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Introduction

Action for Stammering Children are working with the James Lind Alliance (JLA) on this exciting new project thinking about the priorities for research into childhood stammering/stuttering. We want to make sure that future research addresses the questions that are most important to children and young people who stammer, their families and the professionals who work with them.

Can you spare ten minutes to help us?

What is a PSP and how does it work?

Priority Setting Partnerships (PSPs) bring patients, carers and professionals together to help identify the top 10 unanswered questions about a topic. At the end of the project, we will publish a list of the top 10 most important questions (Top 10 Priorities) for future research, which are informed by YOU. 

How can I contribute?

We are looking for children and young people who stammer, families, friends, colleagues and people who work with individuals who stammer to take part in this short survey. You will have the opportunity to ask your questions about stammering that you would like answered in the years to come.

The survey is divided into two parts:

Part A – What are the research questions you would like answered?

Part B – Information about you

The information we collect from you will help inform our Top 10 Priorities. This Top 10 will be shared with funding bodies and research institutions to help guide their decisions about the research that still needs to be done.

What happens to my answers?

Responses to the survey will be anonymous – no one will know the questions that you asked. We may use questions you have asked in future reports.  We will ask a few questions about you, including your gender, ethnicity, etc. If you don’t want to answer these questions, then you don’t have to. All the information you share with us will be stored securely and destroyed at the end of the project – you can read our privacy policy here.

If you start the survey and decide you don’t want to finish it, you can exit by closing your browser.

Who can take part in this survey?

We’re focusing on priorities for research that will support children and young people aged between two and 25 years of age. This includes those who stammer currently as well as those who used to stammer.

This survey is only open to individuals living in the UK. We welcome responses from families of all language backgrounds, including those whose first language is not English.

We’re keen to hear from:

  • Children who stammer – you can complete this survey with your parents
  • Young people who stammer or who have experienced stammering at an earlier time in their life
  • Parents/guardians of children and young people (aged between 2 and 25 years) who stammer or stammered previously
  • Speech and Language Therapists working with this age group
  • Other Health and Education Professionals who work with individuals who stammer up to 25 years of age
  • Friends and colleagues of children and young people who stammer